Or…
…last chance to stand.
Yesterday I had my appointment with the surgeons regarding my feet. It didn’t go that well, and I’m, fairly disappointed. It’s been more than a year since I last mentioned it, so here’s the problem: The inside tendons on both feet are pulling each foot inward so I can’t put any weight, let alone stand on them. The attempt to put them right, two years ago, went catastrophically wrong and it’s a bit of a miracle I’m still here. I know a few other Ataxians with the ankle problems, but none so severe so I can’t ask advice. I really hate my feet; it’s not aesthetics, they cause most of my dependence.
Anyway, I went back recently as the straightening I did get has now vanished and the pulling is giving me discomfort/mild pain. I wanted to ask if there were any other options besides doing the same again. I had x-rays done but surgery is looking unlikely, fucking Hobson’s. :(
Well not quite, here are the options:
1. Frames as before – Too dangerous, also in two years time I’ll be right back here now.
2. Frames with bone fusing – Too dangerous and fusing bone together presents other risks.
3. Splitting the tendons – Too dangerous and there’s a huge unknown of how they’d react.
4. Do nothing.
There was the offer of more botox to kill a few nerves, but didn’t do much noticeable good last time. M y only option now is to wait to see if stem cell treatment will help (years off).
I feel fucking shit.















